Skip to content or main menu

Erase MS

"How I Got My Reading Groove Back" - A Guest Blog

Posted July 7, 2011 and tagged with multiple sclerosis, neurology, optic neuritis, optometry, tysabri.

Our first guest blog comes from Ricardo V. – we are so excited he shared his story with us. If anyone else is interested in being a guest blogger, please email social@erasems.org. Now onto Ricardo’s story:

How I got my reading groove back, or how I learned to accept my optic neuritis and still enjoy a good book

About a year ago, a few months after I was diagnosed with Multiple Sclerosis, I encountered what looked like a sun spot or halo in my right eye. After going to my neurologist and consulting an optometrist, I learned that it was optic neuritis. It thinned out with help of IV steroids but the steroids didn’t help my confidence when it came to reading. I had amassed a small collection of books the month prior to my MS diagnosis and I had left them exactly where they were, on a shelf collecting dust.

It bothered me that aside from the physical limitations that I was experiencing with my legs and balance, I was limited in my vision as well. After a few months of nothing but TV, TV and more TV, I was set to go back to the optometrist. (I’m jumping around in time a lot; this was throughout the span of about 8 months, 2–3 visits to this Dr. and inclusion of Tysabri in my treatment.) The optometrist performed field of vision tests on me to check my peripheral vision (which was previously affected) and a battery of other tests. My vision was improving. It wasn’t the best in the world, but I was thankful for any improvement! So a few weeks later I went on a road trip with my wife to Ohio to visit family. Along with my standard luggage, I decided to stop feeling sorry for myself and bring a book or three. It’s a good thing that I brought those books along; I managed to read two out of the three. I was very excited about that accomplishment. No one should ever let themselves get talked out of achieving the goals that they set out for themselves. With me, I think I was just a combination of fear and me just psyching myself out which in retrospect is probably typical.

Start the conversation

Find us on Facebook. Follow us on Twitter. YouTube. Pinterest. Subscribe to our RSS feed.

Copyright | Site By Urban Jungle | Powered by Inflight