"Heat, Design, & Disease" - A Guest Blog
Our second guest blog post comes from Van DiBernardo, a former DKNY designer & MS patient. Here is his story:
Heat, Design, & Disease
As a shoe designer for Donna Karan, I was in perpetual motion: Designing, prototyping, overseeing the production of samples in Brasil, Italy, Spain, France – even when home in Manhattan, I was on par with the city that never sleeps. I was tireless and curious.
My diagnosis with MS has led me down a very unexpected and different path than I had been planning. Instead of designing shoes, I now design ways to help others. Thanks to MS, I again live in my hometown of Buffalo, NY. MS has been a blessing in these ways.
If not for MS, I might never have known how many people struggle for something as simple as Quality of Life. Might never have learned how I could make a difference in one life, much less many lives. If not for the support group I started 7 years ago, I might never have recognized my passion for helping others, which led to Coolture, a venture that allows me to maximize my intimate knowledge of both design and disease.
Through Coolture I will soon introduce a garment designed to cool the core body temperature, thereby reducing the debilitating effects caused by heat on those with MS and other diseases. Unlike other cooling vests, my design offers a clean, sporty appearance—a garment designed for people, not patients.
If you want to chat about MS, symptoms, disease management, cooling, or other curiosities, E-mail me please. I may not have the answers you need, but I will always try to help.
Van (left) at the Race to Erase MS Gala
Van’s signature sketch he used to use in his portfolio
Press + Media
- Print Press Coverage
- TV Press Coverage
- Online Press Coverage
- Foundation Videos
- Foundation Blog
- Press Materials
Topics of Interest
Posted: Mar 01, 2014Utilizing membership data from Kaiser Permanente Southern California, researchers analyzed the health records of 305 women aged ...
Posted: Apr 07, 2014Please join us on May 2, 2014 at the Hyatt ...
Posted: Sep 24, 2013Taking place at the Hyatt Regency Century City on December ...
Posted: Jun 12, 2013The 2012-2013 Virtual Race to Erase MS raised around $30,000 ...