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Erase MS

August 12, 2009 - A Guest Blog

Posted November 18, 2011

We were fortunate enough to be connected with this incredible young man, Tristan Williams, through one of our other fabulous guest bloggers. Our friend Tristan was diagnosed with MS at the age of 19, and decided to launch a support group for MSers in his community! Besides founding and running the support group, Tristan is also in the final stages of creating his own nonprofit organization, The Tristan WilliaMS Foundation, to spread MS support and awareness on a global level. Pretty amazing right!? Here is his story:

August 12, 2009 ~ The Day of Diagnosis

Day in and day out I prepare to fight a battle against myself, but how does that make any sense. My body has turned against me, and I am afraid that there is no turning back. My name is Tristan Williams, and I was diagnosed with Multiple Sclerosis two years ago.

Nothing could’ve prepared me for this life changing diagnosis. There I was, sitting in the Doctor’s office awaiting the same news that the other 2 Doctors gave me, “We can’t seem to find anything wrong with you Mr. Williams.” As the Doctor walked into the room, he told me he had good news and bad news. I obviously asked for the bad news first.“Based on the results of your MRI, we have come to the conclusion that you have Multiple Sclerosis, do you know what that is?” To be honest, at that time I had no clue what MS was, so I asked him to tell me the good news before I started jumping to conclusions. “Well the good news for you, Tristan, is that MS won’t affect you until you hit your 30’s.” That statement will never be forgotten; because here I am two years later, 21 years old, trying to figure out what went wrong.

I am currently on my 3rd medication, and I am still progressing. My cane has recently become my new best friend. With increased difficulty walking, combined with an array of other symptoms; MS has stripped away a lot of the things that most of us can take for granted.

Through all of this, I saw the lack of support for young adults with MS within my community. I decided to start my own Non-Profit Organization, and a localized support group for MS to be able to help give a voice to those in need.

The “Road to You” MS Support Group was co-founded by me and Jennifer Doran, my nurse (and trusted friend) from the Montreal Neurological Hospital. The group, created 7 months ago, already has a total of 25 group members and counting. Each session is held for 90 minutes, once a month. We discuss new treatments, research, complementary and alternative medicines; but, most importantly, we share our individual struggles, triumphs and stories about the disease that brought us together.


Pictures of the MS Support Group Session

I am hoping for the Tristan WilliaMS Foundation, to be up and running within the next 6 months. My goal is to spread awareness for Multiple Sclerosis to all ages and demographics internationally.

MS has taught me to live through my heart, and not let anything come in the way of what I believe in. I have fully committed my life to the betterment of MS not just in my own community, but in communities worldwide.

-Tristan Williams

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Comments

  • This is such an amazing young man, and as a health care professional it is empowering for me to have the opportunity to see what has blossomed within this incredible group of people over the last few months. The MS world definitely will learn a lot from Tristan and many will benefit. Simply amazing.

    Jen said (2 years, 11 months ago)
  • This is a remarkable story, and proof that we are all given an important role.

    Tristan, you are going to be a beacon for so many people who need a place to question, cry, and find comfort -- I look forward to hearing more on this. In the meantime, congratulations to you, and many blessings.

    luanne dibernardo said (2 years, 11 months ago)
  • Godspeed, Tristan. Keep up the excellent work. Hoping for brighter days ahead.

    Dan said (2 years, 11 months ago)
  • Tristan and I grew up together. We played basketball, lifted wieghts, boxed etc. As life went on we have each gone our seperate way but, never stayed out of contact. The day Tristan told me the news of his ailment I knew things would never be the same for him pysically. Regardless of this fact, Tristan Williams is a fighter and always will be. I encourage others to take part in the activities, general support, or financial aid for his and any other MS foundation if they have the facility to do so. So many others like my friend Tristan only have a voice. My friend is doing everything in his power to show the world that we are always in control of our mentality in some form or another. If you suffer from MS as well "Join The Fight" and don't let your body let your spirit down.

    Justin F. said (2 years, 3 months ago)
  • I thank all of you for the kind words. I am greatly appreciative of the support. I am on this journey to help past,present,and future MS patients find their pathway to healing. I am working on writing a pt2 to this blog in the next coming weeks. I have changed my whole lifestyle, and 8 months later, I am symptom free. It's at the point where I feel as if MS can no longer exists within my body. I can't wait to share more of my story with all of you. Stay positive, and ask for what you want. Anything is possible, the body was made to heal itself, we just have to believe in that.

    Tristan

    Tristan Williams said (2 years, 1 month ago)

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