News from September 2012
A new drug, BG-12, is showing promising results after the completion of clinical studies. BG-12, a drug that would be taken orally as a pill, showed a 50% reduction in relapses and brain scarring through a two year trial. While we are all still working hard to find a cure, each day we are getting closer and learning to control the disease through these treatments. If approved by the FDA, BG-12, which is being developed by drug maker Biogen Idec, will become the third oral drug for people with multiple sclerosis. Stay optimistic! So much progress is being made and the future is bright! We will find a cure!
Another fabulous blog post from our friend, Caroline, who discusses a book that she read about a woman’s struggle with MS, and gives us a little review about the book! The book sounds wonderful, informative, and humorous, we are always looking for a good read!
Since my diagnosis of Multiple Sclerosis over 6 years ago, I have read many books about the disease. My favorite type of MS book to read are autobiographies. When I didn’t know anyone with MS, I found these books comforting, hearing someone tell me their story.
I learned about the book Potty Mouth by Renae Clare on Facebook. I just finished it and really enjoyed it. This book talks about the struggles Renae has had throughout her life and her 40 years since diagnosis. Renae is honest about the struggles she has had and doesn’t sugarcoat anything. The book is called Potty Mouth because Renae herself has a bit of a potty mouth, but c’mon… hasn’t MS made you want to say a few profanities now and again?! Renae has a theme of humor throughout the book and comes up with some pretty amusing chapter titles. Here are a few for your enjoyment:
“Hospital Beds and Catheters and Wheelchairs… Oh My!”
“My Mother Was Not a Dustpan”
“Koo Koo for Coupons”
Renae started the book by suggestion of her psychotherapist, Dr. Cinzia Levalds. She wrote essays after each session and then compiled them into the book. Throughout the book you see Renae coming to terms with lifelong difficulties and her moving past them. Renae’s ex-husband, whom she calls F***wad verbally abused her throughout their marriage and left her for another woman. That is difficult enough to deal with, but throw MS into the mix and you’ve got some hard times for sure.
The book also gives helpful tips. Renae is now in a wheelchair and needs assistance. She had some rough times with hired help and tells us to upfront set boundaries (she learned the hard way) and questions we should ask the person coming into our home. She also tells us the benefits of Life Alert. Ya know.. “I’ve fallen and I can’t get up?” Well, for those times you really can’t get up, it truly is a lifesaver.
I found this book refreshing in the way that the book is completely honest and Renae is inspiring. No matter what crap life throws at you, it is always possible to come out on top. It’s definitely not easy, but possible!
We came across an interesting topic on Fox News about how positive thinking is so important in helping to cope with chronic illnesses. The video segment features Michelle Clos, a life coach at Everyday Matters, who has been living with MS for 21 years and has benefited from positive thinking! Shawn Achor, a Harvard researcher and author of The Happiness Advantage, and Michelle Clos offer advice and tips on how to incorporate positive psychology into people’s lives. Check out the video segment below:
A wonderful lady, Kathy Reagan Young, is helping raise MS awareness and funds for MS research! She has multiple sclerosis and she is commited to finding a cure! This year Kathy and her husband, a golf pro at Cedar Point Country Club in Suffolk, Virginia, along with the Ladies Golf Association, are hosting a golf/tennis/dinner event on Thursday, September 27, 2012.
Check it out here: Teed Off at M.S.
What a spectacular fundraising tournament she is putting on and all the proceeds will benefit our Center Without Walls program – our coalition of MS researchers, physicians and scientists that work together on innovative and therapeutic approaches and treatments to eradicate this disease! Thank you Kathy Young for all your amazing support! We are so inspired by those who are helping raise vital funds to find a cure for MS, raising awareness and building a community of support to erase MS together!
FDA approves new multiple sclerosis treatment Aubagio – making it the second oral therapy that will be available on the U.S. market. Most MS treatments are injectables.
The U.S. Food and Drug Administration approved Aubagio (teriflunomide) yesterday, a once-a-day tablet for the treatment of adults with relapsing forms of multiple sclerosis (MS).
“In a clinical trial, the relapse rate for patients using Aubagio was about 30 percent lower than the rate for those taking a placebo,” said Russell Katz, M.D., director of the Division of Neurology Products in the FDA’s Center for Drug Evaluation and Research. “Multiple sclerosis can impair movement, sensation, and thinking, so it is important to have a variety of treatment options available to patients.”
MS is a chronic, inflammatory, autoimmune disease of the central nervous system that disrupts communication between the brain and other parts of the body. It is among the most common causes of neurological disability in young adults and occurs at least twice as frequently in women as in men. For most people with MS, episodes of worsening function (relapses) are initially followed by recovery periods (remissions).
For information and consumer inquiries: 888-INFO-FDA
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